One of the first specialist, non profit, rare disease counselling and psychotherapy service in the world.
You can email us to book a counselling session with Ms Garima Mehra mentioning your name and mobile number:
info@wilsonscommunity.com
Garima Mehra is a counselling psychologist with a Master’s in Clinical Psychology, Certified in CBT, REBT, and trauma-informed counselling.
Living with Wilson’s disease, she has faced challenges like stiffness and speech difficulties, but they never stopped her from pursuing her dreams. She has supported individuals through a range of mental health issues and currently offers counselling sessions through chat mode, which enable her to communicate effectively despite speech challenges.
Rare conditions often come with unique challenges that can deeply affect both the individuals diagnosed and their entire support system. The unpredictability, limited treatment options, and social isolation that often accompany rare diseases can lead to emotional distress, anxiety, and even depression.
For individuals living with rare conditions, the journey can be overwhelming—coping with symptoms, frequent medical visits, financial burdens, and the uncertainty of the future. Many also struggle with feelings of isolation, as they may not know anyone else with the same condition.
Caregivers, too, face immense emotional and mental strain. Whether they are parents, spouses, siblings, or other loved ones, they often experience stress, fatigue, and even burnout. Balancing caregiving responsibilities with work, personal life, and self-care can be incredibly challenging.
However, building a strong support network, accessing mental health resources, and finding rare disease communities can make a significant difference. Connecting with advocacy groups, online forums, and counselling services can help individuals and their care bubbles navigate the emotional complexities of rare conditions while fostering resilience and hope.