Welcome To Wilson's Community

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About Us

At the heart of our mission lies a deeply personal journey — one shaped by months of uncertainty, misdiagnosis, and eventual access to the right medical care. What began as an individual experience quickly revealed a much larger, more urgent problem: millions of people are suffering silently, undiagnosed, or misdiagnosed, simply due to lack of awareness, resources, and access to healthcare.

We are building this platform not just to share information — but to create a movement, a community that connects patients, caregivers, doctors, and support networks. In an age where a lot of information, both substantiated and unsubstantiated is available in a scattered manner, we thought it prudent to try and create a platform where credible information is assembled for ease of consumption in a safe environment. It is designed to provide easy access of resources and information to populations that lack access to advanced medical facilities, and where rare diseases often go undetected or untreated

Our work involves

  • Connecting with medical professionals and verified organizations to bring credible, accurate, and updated information to the public.
  • Raising awareness about Wilson’s disease, its symptoms, diagnostic steps, treatment options, and available medicines — especially those that were, until recently, not even manufactured in certain parts of the world.
  • This platform is driven by a vision of equality in health — where every patient, regardless of geography or income, knows what steps to take, where to go, and what help is available.
  • We're not just building a website. We're building a lifeline — one that millions may never know they needed, but that could mean the difference between life and death.

Founder’s Note

I am a young patient and was myself diagnosed with Wilson’s disease at the age of 7. I was one of the few fortunate enough to live in a city with advanced medical facilities and access to the right doctors and support systems. But even then, reaching a diagnosis took nearly five months and involved immense physical and emotional strain.

As I began connecting with others affected by the same condition, a disturbing pattern emerged: people from rural and semi-urban areas were being diagnosed too late — or not at all. Access to the correct medicine, awareness of symptoms, and even basic diagnostic support was missing. Stories of lives lost simply due to lack of information or the unavailability of affordable treatment became the spark that lit this initiative.

With that experience as a catalyst, I set out to create this platform to bridge the gap between patients and lifesaving medical knowledge and amplify the voices of underrepresented communities

I kept asking myself: Where are the rest of the patients like me? Where are the missing voices? Why is no one talking about them?

This platform is my attempt to answer that — to reach the people who are unheard, and to ensure that whoever needs has access to all the information and resources related to Wilson’s Disease. Whether you are a patient, caregiver, medical professional, or simply someone who wants to help, I hope this space gives you clarity, support, and the hope to move forward.

This is just the beginning.

Thank you for being here.

Zaina