How did you explain Wilson’s Disease to your friends or coworkers?

Resolved

I usually keep it simple and relatable:

“It’s a rare genetic condition that makes it hard for my body to get rid of copper. Too much copper builds up in my liver and brain, so I take medication daily to keep it under control. It’s manageable, but I need to be careful with food, stress, and staying on treatment.”

If people are more curious, I add:

“It’s like my body’s ‘copper filter’ is broken. It’s rare, so most people haven’t heard of it — but it can affect everything from your mood to your muscles if untreated.”

Being honest but calm helps others feel informed rather than alarmed.