If you could give one piece of advice to someone newly diagnosed with Wilson’s Disease, what would it be?

Resolved

Take your treatment seriously and consistently – your life and long-term health depend on it.

Wilson’s Disease is manageable, but only with strict, lifelong adherence to medications that remove or block copper buildup, like chelators or zinc. Skipping doses or stopping treatment can lead to irreversible liver or neurological damage, even if you feel fine.

What you need to do:

Work with your doctor who knows Wilson Disease well – a hepatologist or neurologist depending on which system is affected.

Learn about your condition – knowledge is empowering.

Be patient with your recovery – it can take time to see improvement.

Ask for support—this journey is easier with help, emotionally and practically.